Caregivers / Care Partners - Taking Care of Yourselves!
Caregivers and Care Partners are very important to our Veterans with MS. Be sure to take care of yourself too as you care for your loved one with MS. If you aren’t healthy, it's harder to provide good care.
The website links below give tips on well deserved respite time (taking a break!). All Veterans and Caregivers are eligible for 30 days of respite time per year.
If you need to talk to someone about caregiving, call the VA Caregiver Support Line at (855) 260-3274. A Caregiver coordinator can tell you about benefits for you and your Veteran with MS.
Multiple Sclerosis Caregivers - News and Articles
Emotional Changes in the Veteran with MS: Tips for the MS Caregiver
By Margaret Kazmierski, MSW, LCSW-C, MSCS and Alicia Sloan, MPH, MSW, LICSW
Many people diagnosed with MS say that the emotional changes are some of the most challenging symptoms to cope with. This can have a profound emotional effect on the Caregiver. If you understand how MS affects your loved one emotionally it may help you as you cope with your own feelings and the stress and challenges in your role as a Caregiver. > Read the article
Website Resources for MS Caregivers
We have links to the major organizations that support MS and Caregivers / Care Partners. These organizations support research, education and provide a variety of services for people with MS and their loved ones.
Caregiver Resources specific to Multiple Sclerosis
- National MS Society (NMSS) - NMSS supports MS research, provides programs and services for people with MS and their families and care partners, provides professional education programs, and advocates for MS worldwide. Their mission: To end the devastating effects of MS. NMSS has a 50-state network of chapters.
- Multiple Sclerosis International Federation (MSIF) - MSIF was established in 1967 as an international body linking the activities of MS societies around the world. It publishes a professional journal: “MS In Focus”.
- Consortium of Multiple Sclerosis Centers (CMSC) - CMSC is a professional organization for MS healthcare providers and researchers in North America. Their mission is to maximize the ability of MS healthcare professionals to impact care of people with MS, improving their quality of life. Their website has academic articles and assessment tools for caregivers that can help you understand how providers and researchers assess caregiver wellbeing, burden and stress.
Click to see a comprehensive list of websites for all caregivers.