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Multiple Sclerosis Centers of Excellence

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Caregivers / Care Partners - Taking Care of Yourselves!

Caregiver with MS Veteran

Caregivers and Care Partners are very important to our Veterans with MS. Be sure to take care of yourself too as you care for your loved one with MS. If you aren’t healthy, it's harder to provide good care.

The website links below give tips on well deserved respite time (taking a break!). All Veterans and Caregivers are eligible for 30 days of respite time per year.

If you need to talk to someone about caregiving, call the VA Caregiver Support Line at (855) 260-3274. A Caregiver coordinator can tell you about benefits for you and your Veteran with MS.

Multiple Sclerosis Caregivers - News and Articles

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Emotional Changes in the Veteran with MS: Tips for the MS Caregiver

By Margaret Kazmierski, MSW, LCSW-C, MSCS and Alicia Sloan, MPH, MSW, LICSW

Many people diagnosed with MS say that the emotional changes are some of the most challenging symptoms to cope with. This can have a profound emotional effect on the Caregiver. If you understand how MS affects your loved one emotionally it may help you as you cope with your own feelings and the stress and challenges in your role as a Caregiver. > Read the article

Website Resources for MS Caregivers

We have links to the major organizations that support MS and Caregivers / Care Partners. These organizations support research, education and provide a variety of services for people with MS and their loved ones.

Caregiver Resources specific to Multiple Sclerosis

  • National MS Society (NMSS) - NMSS supports MS research, provides programs and services for people with MS and their families and care partners, provides professional education programs, and advocates for MS worldwide. Their mission: To end the devastating effects of MS. NMSS has a 50-state network of chapters.
  • Multiple Sclerosis International Federation (MSIF) - MSIF was established in 1967 as an international body linking the activities of MS societies around the world. It publishes a professional journal: “MS In Focus”.
  • Consortium of Multiple Sclerosis Centers (CMSC) - CMSC is a professional organization for MS healthcare providers and researchers in North America. Their mission is to maximize the ability of MS healthcare professionals to impact care of people with MS, improving their quality of life. Their website has academic articles and assessment tools for caregivers that can help you understand how providers and researchers assess caregiver wellbeing, burden and stress.



General Website Resources for Caregivers

Click to see a comprehensive list of websites for all caregivers.

Monthly Caregiver Calls

Please join us on monthly MS Caregiver conference calls! Calls are sponsored by the MS Centers of Excellence. Each month we discuss different topics to assist caregivers.

Who

Families and Caregivers of people with MS

When

4th Monday of every month
January 27
February 24
March 24
April 28
May 26
June 23
July 28
August 25
September 22
October 27
November 24
December 22

Time

Pacific Time: 11am - 12 noon
Mountain Time: 12 - 1 pm
Central Time: 1 - 2 pm
Eastern Time: 2 - 3 pm

How

Call 1 (800) 767-1750, then punch in 43157#

Presenters & Facilitators

Description: Maggie Kazmierski
Maggie Kazmierski
(MSW, LCSW-C, MSCS)

Description: Alicia Sloan
Alicia Sloan
(MPH, MSW, LICSW)