Multiple Sclerosis Centers of Excellence
Multiple Sclerosis Data Repository
The Multiple Sclerosis Centers of Excellence (MSCoE) maintain a national MS Data Repository as a part of our mission. The MSCoE repository contains the Veterans Health Administration (VHA) medial data of every patient diagnosed with MS since 1999; over 46,000 unique and de-identified cases. It is the largest collection of information on men with MS in the world. Men comprise more than 80% of the repository with an average age in the mid 50's.
Repository data has been used in our studies of exercise, smoking, obesity, pain, spasticity, falls, access to specialty care, disease modifying therapies, complementary and alternative medicine, telehealth, rural medicine, cost of care, and causes of death among VHA patients with MS. MSCoE also uses it to contact patients and caregivers who are within driving distance of upcoming MSCoE educational events, as well as for the delivery of our MS Veteran newsletter.
If you are interested in learning more about the MS Data Repository, contact Steven.Leipertz@va.gov for details.