Multiple Sclerosis Centers of Excellence
MS Caregivers/Partners - Taking Care of You!
Caregivers and Care Partners are very important to our Veterans with MS! It's important to take care of yourself as you care for your loved one with MS. If you aren’t healthy, it's harder to provide good care.
VA Caregiver Support's audio guide can get you started to help restore your emotional balance.
The National Resource Directory (NRD) is a great resource website that connects wounded warriors, Service Members, Veterans, their families, and caregivers to programs and services that support them.
Caregiver and Veteran web resources and FREE courses by the VA and PsychArmor Institute about VA Caregiver Benefits.
The VA Office of Rural Health has a great website of resources for Veterans and a Caregivers Video Series.
Our community partner, the National MS Society has great resources to assist people with MS and their Caregivers/Care Partners. Contact an MS Navigator if you need help identifying carepartner resources in your community and download this resource guide (pdf).
Respite Care - All Veterans and Caregivers are eligible for 30 days of respite care per year.
Home Healthcare Services
Aid and Attendance support
Advanced Care Planning
Understanding Long Term Care Options
VA Caregiver Support Program Caregiver Support Line – 1-855-260-3274
VA Caregiver Program MS Fact Sheet for Family Caregivers See also updated National MS Society Link on Veterans with MS
|New! REACH VA - MS is "Resources for Enhancing all Caregivers Health of Veterans for Multiple Sclerosis." REACH VA-MS is for VA Caregivers and Care Partners of Veterans with MS.
REACH VA - MS helps Family Caregivers/Care Partners/Spouses develop skills and strategies in stress management, coping, problem-solving, and mood management.
Relaxation techniques are also taught.
Ask your MS Care Team or VA Caregiver Coordinator if a Caregiver REACH VA-MS program or other support group is available at your VA. REACH Coaches are Certified REACH VA Program Coaches to help Caregivers develop skills in stress management, disease-specific knowledge, and coping strategies to reduce Caregiver stress and burden.
Caregiver Resources and Presentations
Coping with Caregiver Burnout
Tips for Managing Caregiver Burnout
• Caregiver Guides
Multiple Sclerosis: A Guide for Patients, Families, and Caregivers (American Academy of Neurology)
• Communication Skills
Caregiver Communication: Taking Care of You
Caregivers: Working Well with your Providers
Choosing Your Words: Harnessing the Power of Communication
Setting Boundaries: Defining What is Best for You, the Caregiver
• Depression and MS
Depression and Suicide Risk in MS: How Caregivers Can Help!
• Emotions and MS
Emotional Changes in the Veteran with MS: Tips for the MS Caregiver
Tempering the Tyrant: Finding Anger’s Rightful Place
Making my Goals Matter: Looking Forward to the Year Ahead
Exploring Problem Solving Skills for Caregivers
• Happiness and Quality of Life
Everyday Matters Program - National MS Society
• Lesbian, Gay, Bisexual, Transgender Veterans and their Caregivers
• Medication Management - MS Disease Modifying Therapies
DMTs & Caregiving
• Mood and Mental Health Concerns
Understanding MS Mood Changes
• Occupational Therapy
Occupational Therapy for MS Patients
Easing Pain in MS for your Loved Ones & Yourself
• Physical Rehabiliation
MS & Physical Therapy
• Post-traumatic Stress
National Center for PTSD - Veterans/Family/Friends
• Relationship Building
Leaning into Love: Building Strong Relationship Bonds
• Self Care Handouts from VA Caregiver Support:
Self Care when Caring for Loved One with Mental Health Concerns
Caregiver Self Care: Embracing the Magic in the Moment
Creating a Space for You: Caring for a Loved One at Home
Preserving Caregivers on the Front Lines
Stepping into Stillness
Bend and Not Break: Controlling spasticity before it controls your loved ones
• Stress Management
Mindfulness Stress Reduction
Guided Imagery (scroll down to “Visualization of Relaxation Techniques” video)
Tai Chi (gentle)
• Travel with MS
Travel Resources for travelers with disabilities
Transportation and Driving
Negotiating the Emotional Milestones of Aging, Illness and Caregiving
MS Centers of Excellence Research & Presentations
Research and Caregivers
Multiple Sclerosis Foundation
Multiple Sclerosis Association of America
National MS Society
♦ A Guide for Caregivers
National Alliance for Caregiving: Multiple Sclerosis Caregivers 2012 Report
Veteran Service Organizations - Serving Veterans with MS
Paralyzed Veterans of America (PVA)
Disabled American Veterans
Military/National Guard & Reserve/Veterans
Caring for Military Families - Elizabeth Dole Foundation
Hidden Heroes - Elizabeth Dole Foundation
Care for Wounded Soldiers Caregiver's Support Kit®
Military Families Learning Network - Military Caregiving
Service Members & Families - Defense Centers of Excellence for Psychological Health & Traumatic Brain Injury
The Real Warriors Campaign - Psychological Health Concerns - Family Support
Caregiver Action Network
Caregiver Stress support at WomensHealth.org
Family Caregiver Alliance - National Center on Caregiving
National Caregiving Foundation
National Family Caregivers Association
National Resource Directory
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